Lucia Elizabeth Dawkins was born on April 26th, 2011. We did not have one reason to believe that our daughter would be diagnosed with anything special-at 10 days old she was diagnosed with PKS. Lucia was born full term and currently, at almost 8 weeks, has a g tube, has had her stomach wrapped/nissen, suffers from severe obstructed and central sleep apnea, aspiration, and has webbed fingers on one of her hands. She is the light of our lives and despite all the complications and doctors visits we LOVE each and every day with our Little Lu. You can see her progress, follow her blog at
Please feel free to email either myself, Juliet, or her father Jason with any questions. We live in Denver, Colorado.